Being far from superstitious people or the type who get caught up in "numbers or signs", we have to admit, the update we are about to provide truly boggles our minds while bringing smiles to our faces and tears to our eyes.
Yesterday evening (August 18th), exactly 111 days after Avery passed away, we received a phone call from Vincent Gaynor with Sophia's Cure Foundation notifying us that the total amount of donations in Avery's name had just reached over $500,000. With the multiple matching donors, this means exactly 111 days after Avery passed away, she achieved her goal of raising the $1,000,000 ($1.5+ mil to be exact) necessary to fully fund the Phase 1 clinical trials of Dr. Kaspar's Gene Therapy program in an effort to cure Avery's friends with SMA. And as soon as the FDA gives approval, estimated to be in the early part of 2013, Dr. Kaspar can begin helping Avery's friends.
Thank you to everyone who donated $0.01 to $111,111.11 and beyond. Avery's goal could not have been achieved without you and we sincerely thank you from the bottom, middle, top, and all sides of our hearts! Please remember to continue sharing Avery's story, spreading her message about SMA to protect future children & their parents from SMA, and helping to fund a cure for Avery's friends still battling SMA.
And lastly, please remember that Avery's goal was to raise $1,000,000 towards a cure for SMA and then do it again...she's already met the first part of that goal and now she's half way towards doing it again. Once again, thank you for being a part of Avery's life and for continuing to be a part of her everlasting story.
Twitter (AveryBucketList) and Like her on Facebook (Averys Bucket List)! The more people who are aware of SMA, the less likely future children will be affected by SMA, and the more likely there will be a cure for Avery's friends who already have SMA!