Thank you to everyone who is sharing my message about SMA. But remember, it's not just about following or sharing my story, it's about knowing my story, as well as the stories of other families who have battled, are currently battling, and will battle SMA of all types & severity in the future. But then most importantly knowing what SMA is, so together we can all make a difference with regard to the future of SMA in our society.
Before I write about my last two days, I want you to meet my friend Estella. I haven't actually met Estella yet, but I hope she'll accept my friendship sometime in the extremely distant future. You, see on the same day my mommy & daddy were crying tears of joy bringing me home from the hospital, Estella's mommy & daddy were crying for an entirely different reason.
Estella & I are not the first, nor will we be the last. Think of us all and let's kick SMA's...BUTT (I don't want daddy to ground me again).