"We are all born pure & innocent. We can let the world change us, or we can change the world."
While the SMA carrier gene is more prevalent in certain races it does not discriminate based on race, sex, or religion. Also, as of this moment, approximately 1 in 6,000 of my friends are born with SMA. Way back before I was born, in the year 2005, there were 130 million of my friends born around the world. So if my math is correct, approximately 22,000 of my friends were born with SMA in the year 2005. And who knows how many more of my friends in the past, present, and future have been unknowingly born as carriers of the SMA gene.
Oh and if you have a relative who has SMA or is known to be a carrier of SMA, then your chance of being a carrier is even greater.
According to the Chief of Genetics Service at Texas Children's Hospital the answer to most of these questions is...
"Currently it's not being offered as a standard recommended test. It is a cost related decision."
|I like cookies too!|
|I'm no longer afraid of monsters.|
|I like when my daddy holds me too!|
|The monitor adds ten lbs...you should see me in person ;-)|
|Hey handsome! I like shopping too!|
|Purple is one of my favorite colors too!|
|I hope to be an older sister just like you.|
|Hi to you too!|
|Giiiiiiiirl, love the dress! Where did you get it?|
|My future sister-in-laws with my future hubby.|
|Fight the power! I will.|
2. Stand on a soap box...whatever that means
3. Bring complete strangers together in support of my cause
4. Further educate people about Spinal Muscular Atrophy